Raelynn playing with her toys! // video from Christmas 2016

We’re always on the lookout for toys that work well for children with disabilities. Among other things, Raelynn is quadriplegic and has cerebral palsy. But we’ve found toys that she likes!

Visit Raelynn’s website to learn more! sunshinebaby.tv

The first toy she played with was custom made just for her. It is a board full of Christmas lights that also plays music, and the lights light up with the music!

The second toy she plays with is the shaking sheep. It’s hooked up to an assistive button. This allows her to turn it on and off by pushing a fairly sensitive button. We place her hand over the button, and when she pushes it down ever so slightly, the sheep with shake and make noise. It’s a great toy for her to learn how to use her button, which can also be hooked up to many other toys and devices! (Each one usually need to be adapted to work with the button)

Raelynn doesn’t always have great control over her hands (it comes and goes), but the button/switch is a great tool to explore for children with cerebral palsy!

Big Red Button: ift.tt/2ZX00WF

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A few playlists you may find helpful:
⏩ Seizures: youtube.com/watch?v=…
⏩ Tobii Dynavox: youtube.com/watch?v=…
⏩ Assistive Equipment: youtube.com/watch?v=…
⏩ Medical Procedures: youtube.com/playlist…
⏩ Living Life with Disabilities: youtube.com/playlist…

ABOUT RAELYNN’S YOUTUBE CHANNEL

Raelynn has epileptic encephalopathy, global developmental delay, cerebral palsy, cortical vision impairment, and I could go on and on. In fact, I’ll go on a little more. Raelynn is quadriplegic. She has a gastro-jejunal (GJ) tube through which she “eats” all of her food. She has a vagus nerve stimulator (vns), and is currently getting intravenous immunoglobulin (ivig) treatments to hopefully help with her seizures. She regularly wears a shaker vest, uses a nebulizer, and a cough assist machine to help her breath better, especially when she seems extra susceptible to aspirating on her oral secretions.

Raelynn’s been to the doctor more times than the rest of our family combined!

In this whole situation, if we were looking for hope in our circumstances, we honestly wouldn’t find much. Raelynn will probably always be in a wheelchair. She’ll probably always be fed via a food pump. She’ll probably never talk. And she has virtually no chance of getting better.

I can’t tell you how many times people have told me, “God can heal her.” I’ve actually come to find it a little funny when people say that (and I’m a pastor!). I know that God CAN heal her, and I know that God will heal her in eternity, but the point of life is not that we wouldn’t have difficult circumstances.

God is using Raelynn exactly as she is right now. I see how much I’m a better person because of Raelynn. I see the ways God has changed my family, the things He’s taught us, the people He’s put us in connection with, all because of Raelynn’s problems. When I see how much God uses her disabilities, I see that God takes the bad things, the hard things, the hopeless circumstances of our lives and brings beauty, goodness, and hope from them all.

That’s what this channel’s about.

We post videos of Raelynn’s life, seizures, and other disabilities to this channel six days a week (Monday – Saturday).

If this sounds like something you could benefit from, please consider subscribing! Your subscription will help us keep making videos of Raelynn’s life and assistive technologies! ❤️
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