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A Life of Love & Hope with Seizures

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Raelynn riding the St. Louis Zoo train!

Raelynn riding the St. Louis Zoo train!

Posted on July 4, 2020Author chrisPosted in VideosLeave a Reply

Raelynn loves riding the train at the St. Louis zoo! Visit Raelynn’s website to learn more about her! sunshinebaby.tv 👇 PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… This video is from 2017, but it just reminded me that we need to get back to the St. Louis Zoo as soon as we can!…

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A video of a Seizure & and an update on Raelynn’s seizures

A video of a Seizure & and an update on Raelynn’s seizures

Posted on July 3, 2020Author chrisPosted in VideosLeave a Reply

If you just want to see a video of the seizure Raelynn had, skip to 00:31. But keep watching to get to get an update on Raelynn’s seizures! Also, visit her website to learn even more! sunshinebaby.tv 👍🏻 Give Raelynn a “like” for less seizures! 👇 AND PLEASE SUBSCRIBE if you find this content helpful.…

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Raelynn is HAPPY and TRYING TO TALK after her shower!

Raelynn is HAPPY and TRYING TO TALK after her shower!

Posted on July 2, 2020Author chrisPosted in VideosLeave a Reply

Raelynn isn’t able to talk. She’s never said a word, as far as we know. But sometimes, when she’s really happy, she moves her mouth and makes noises! She was making high-pitched “Ah” noises just before we started recording…but then she stopped. Also, visit her website to learn even more! sunshinebaby.tv 👇 PLEASE SUBSCRIBE if…

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Raelynn having a happy seizure!

Raelynn having a happy seizure!

Posted on July 1, 2020Author chrisPosted in VideosLeave a Reply

If you just want to see the video of the seizure Raelynn had, skip to 00:45. But keep watching to learn about Raelynn’s happy seizures! Also, visit her website to learn even more! sunshinebaby.tv . 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… They’re actually called, “ecstatic seizures.” Raelynn doesn’t have these…

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Raelynn playing with Wrapples!

Raelynn playing with Wrapples!

Posted on July 1, 2020Author chrisPosted in VideosLeave a Reply

Raelynn loves playing with Wrapples! It’s probably one of her favorite toys. 👇 PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… Little Live Wrapples make good toys for kids like Raelynn. These are a few reasons why Raelynn likes to play with her Wrapples. * They make fun noises, and she likes toys that…

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How to cath a girl // using a straight catheter

How to cath a girl // using a straight catheter

Posted on June 27, 2020Author chrisPosted in VideosLeave a Reply

This video talks about how to cath a girl using a straight catheter. It does not show it explicitly, but does show a diagram. Raelynn often retains her urine. While she does usually pee on her own, there are also times when she doesn’t. And if she retains too much urine in her bladder, she…

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Have you ever seen THIS during a seizure?

Have you ever seen THIS during a seizure?

Posted on June 27, 2020Author chrisPosted in VideosLeave a Reply

Watch to the end! I want to share what happens at the end of many of Raelynn’s seizures. It’s not a huge thing, but it is something Raelynn does a lot, but I haven’t seen anyone else with seizures do it or talk about it. Visit Raelynn’s website to learn more about her! sunshinebaby.tv .…

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What are seizures like? // commentary during a seizure

What are seizures like? // commentary during a seizure

Posted on June 26, 2020Author chrisPosted in VideosLeave a Reply

What are seizures like? In this video, I explain how Raelynn’s seizures often look, and what we do to help her while she’s having a seizure. Visit Raelynn’s website to learn even more! sunshinebaby.tv . 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… Raelynn primarily has tonic clonic seizures. Tonic clonic seizures…

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Seizure Meds // what medications do we give Raelynn at night?

Seizure Meds // what medications do we give Raelynn at night?

Posted on June 25, 2020Author chrisPosted in VideosLeave a Reply

Raelynn is on several seizure meds. Some of them are more helpful than others. We’ve also tried several other meds that I don’t mention in this video. I may make another video about them in the future. Visit Raelynn’s website to learn even more! sunshinebaby.tv 👇 PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/…

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Tonic Clonic Seizure Video

Tonic Clonic Seizure Video

Posted on June 24, 2020Author chrisPosted in VideosLeave a Reply

If you just want to see the video of the seizure Raelynn had, skip to 00:31. . 👇 AND PLEASE SUBSCRIBE if you find this content helpful. youtube.com/channel/… Raelynn’s seizures change over time. Lately, she’s been having a lot of these seizures which end with heaving and heavy breathing. It’s difficult to determine exactly when…

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